TOPIC: Chronic Illness: Information and Coping

The following reflects our most recent response for technical assistance related to this topic. This list represents a sample of information to get you started and is not meant to be exhaustive.
(Note: Clicking on the following links causes a new window to be opened. To return to this window, close the newly opened one).

Center Developed Documents, Resources, and Tools

Continuing Education Module

• Mental Health in Schools: New Roles for School Nurses (Continuing Education Module)

Newsletter

• School Linked Services and Beyond (Newsletter, Spring, '96)

QuickFind

• Physical and Somatic Complaints

Resource Aid Packet

• Screening/Assessing Students: Indicators and Tools (Resource Aid Packet)

Technical Aid Packet

• School-Based Client Consultation, Referral, and Management of Care (Technical Aid Packet)

Technical Assistance Sampler

• School Based Health Centers (Technical Assistance Sampler)

• Adaptation to Childhood Chronic Illness: Research on Children and Families
• Adolescent chronic illness: a qualitative study of psychosocial adjustment.
• Asthma and Upper Respiratory Illnesses
• Back to School: A Handbook for Teachers of Children with Cancer
• Cancervive Teacher's Guide for Kids with Cancer
• Caring for Children with Special Needs: Chronic Illnesses
• The Child with a Long-Term Illness
• Children and Chronic Illness
• Children With A Chronic Illness: The Interface of Medicine and Mental Health (PDF Document, 43K)
• Children with Chronic Condition
• Chronic Illness in Adolescence
• Computer Programs Help Children Cope With Chronic Illness
• Cystic Fibrosis
• Diseases & Conditions Directory (Resources)
• Facts about Cystic Fibrosis
• How Parents Can Help Their Child Cope with A Chronic Illness
• How to Care for a Seriously Ill Child
• In the Shadow of Illness: Parents and Siblings of the Chronically Ill Child
• Medical Problems (in children)
• Prevalence and impact of chronic illness among adolescents
• Promoting School Success in Children with Chronic Medical Conditions
• Psychosocial Risks of Chronic Health Conditions in Childhood and Adolescence
• Psychological Complications of Chronic Illness
• Teens and Coping with Chronic Illness
• School disruptions (related to chronic illness)
• School Issues for Children with Chronic Illnesses
• Students With Chronic Illness: Guidance for Families, Schools and Students
• Supporting Students with Asthma
• Young People with Cancer

• Best Practices in School Psychology - III: Ch 34: Best Practices in Addressing HIV/AIDS Issues in the School
• Children's Coping with Chronic Illness
• The Effects of Chronic Illness on Children and Their Families: An Overview
• Helping Children Understand: A Guide for a Parent with Cancer
• Identification and Assessment of Ongoing Stressors: An Application of the Behavior-Analytic Model
• Living with a Parent's Chronic Illness
• Respite Care
• Social Work Protocols: Teen Health Clinics
• Special Issue on Psychological and Behavioral Aspects of Children's Health and Illness in International Settings

• Brave Kids
• Cystic Fibrosis Foundation
• Health AtoZ.com
• National Association of School Nurses
• National Center for Chronic Disease Prevention and Health Promotion (NCCDPHP)
• National Mental Health Information Center (from SAMHSA)
• National Maternal and Child Health Clearinghouse
• UMass-Simmons School Health Institute

• Cognitive Aspects of Chronic Illness in Children. Brown, Ronald T. , Ed. (1999). New York, NY: The Guilford Press.
• Families coping with childhood chronic illness: A research review. By Cohen, Marie (1999). In: Families, Systems & Health, 17 (2): 149-16.
• Living With Childhood Cancer: A Practical Guide to Help Families Cope. By  Woznick, Leigh & Goodheart, Carol (2002). APA Books.
• Performance of screening tools for mental health problems in chronically ill children. By Canning, EH & Kelleher, K (1994). In: Archives of Pediatric and Adolescent Medicine, 148(12): 1354-6.
• Progress in diagnosis and understanding chronic pain syndromes in children and adolescents.  By Cassidy, JT (1998). In: Adolescent Medicine,  9(1): 101-14.
• Quality-of-life measures in chronic diseases of childhood. By Eiser, C & Morse, R. (2001). In: Health Technology Assessment, 5(4): 1-157.
• Surviving chronic physical illness: psychosocial outcome in adult life. By Gledhill, J; Rangel, L; & Garralda, E. (2000). In: Archives of Disease in Childhood, 83(2): 104-10.
• Stress, coping, and adjustment in children with a chronic disease: A review of the literature.  By Boekaerts, Monique & Roeder, Irma (1999).  In: Disability & Rehabilitation: An International Multidisciplinary Journal, 21 (7): 311-337.

We hope these resources met your needs. If not, feel free to contact us for further assistance.For additional resources related to this topic, use our search page to find people, organizations, websites and documents.  You may also go to our technical assistance page for more specific technical assistance requests.

If you haven't done so, you may want to contact our sister center, the Center for School Mental Health at the University of Maryland at Baltimore.

If our website has been helpful, we are pleased and encourage you to use our site or contact our Center in the future.  At the same time, you can do your own technical assistance with "The fine Art of Fishing" which we have developed as an aid for do-it-yourself technical assistance.